SUneel's Light

716.243.0882

info@suneelslight.org

275 Northpointe Parkway

Suite 50

Amherst, NY 14228

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About us

Established in 2002, Suneel's Light is a charitable foundation created to raise funds to fuel research for treatments and a cure for Duchenne Muscular Dystrophy. DMD, a lethal genetic childhood disease, targets young boys without regard to ethnicity, and typically leads to death from respiratory or heart failure by their early 20s. Without a breakthrough in ongoing medical research and treatment, there is little hope that Suneel, and other children like him, will live to adulthood.

mission

The mission of Suneel's Light is to spread awareness about Duchenne Muscular Dystrophy and raise funds to support treatments and find a cure for this deadly disease.

Vision

  • To gain knowledge and stay connected

  • To continue to raise funds to fuel our mission

  • To be a player in the fight to find a cure

  • To advance the best option for the boys

  • To maintain credibility and stature locally, nationally and globally

BoarD of directors

Officers

 

Neera Gulati, MD

President

Kenneth Manning, Esq.

Vice President

Anita Ballow
Secretary

Thomas Maher, CPA, CPC
Treasurer

 

Directors

 

Cheryl Barrett

Gary Bichler

William Christ, Esq

Raju Gulati, MD

George Hajduczok, Esq.

Robert Jellinick

David Korzak

 

Chanel Maddigan, Esq

Richard Mazurchuk, MD

Karen Panzarella, PT, PhD, CHSE

Paul Richardson, CPA

Benjamin Roberts

Dennis Schrader

Steven Szymanski

Peter Vito

Suneel's Light is a 501(c)(3) organization. Click on the links below to review recent Form 990s.

how we make a difference

12 local boys measured for robotic exoskeleton arms suffer from DMD

BUFFALO, N.Y. (WKBW) - Twelve local boys suffering with Duchenne Muscular Dystrophy (DMD) were measured for Wilmington Robotic Exoskeleton arms (WREX).

 

The disease is a progressive weakness of muscles. While girls can carry the disease, it typically affects boys. 

 

There is currently no cure, but the light weight exoskeleton device helps the person imitate normal human movements and improves their independence.

 

Our Liz Lewin profiled two boys who struggle with the disease. Their parents said their children have trouble with everyday tasks, such as brushing their teeth, eating, and writing. 

 

The WREX arms are being donated by local non-profits, Suneel's Light Foundation and Glory Be To Kids. 

See WKBW.com to watch interviews or @LizLewin7 on Twitter for more information.

WREX Arms: Life-Changing Devices for 12 WNY Boys

From Spectrum News, August 22, 2017
 

BUFFALO, N.Y. -- 12 boys with Duchenne muscular dystrophy were fitted for life-changing devices in Buffalo Tuesday morning through donations from local organizations. Each boy was fitted for state of the art Wilmington Robotic Exoskeleton arms, which utilize a system of rubber bands to eliminate the gravitational pull on the extremity.

 

The WREX arms improve the quality of life for the wearer, with most boys experiencing a range of motion that they had not had in years.

The donations were made in part by Suneel’s Light Foundation, along with Glory Be To Kids.

 

"It's been an extremely wonderful and inspiring experience to see boys who haven't been able to raise their arm off the armrest of the wheelchair for years, and now they're able to say 'high five' and wave to the crowd. But it's also everyday life, brushing your teeth, scratching your nose, fixing your glasses on your nose. Things that they've always needed assistance," said George Hajduczok, Suneel’s Light Foundation.

 

All 12 boys are set to receive the devices within the next few weeks, just in time for the start of the school year.

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