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Suneel's Light - Meet the Boys - Francis D.

Francis is a smart, fun, happy, giving, thoughtful, beautiful & talented 14 year old with a smile that lights up a room.  Francis has Duchenne Muscular Dystrophy, diagnosed at age 8 & Autism Spectrum Disorder, diagnosed at age 10.   Francis lives in Orchard Park with his parents Steven & Suzanne & his siblings Luke & Zoey.  Francis is a student at Autism Services, Inc., in Williamsville, NY.   Even though we see him fight with his body & his mind on a daily basis Francis still finds a reason to smile.  He has made us remember the simple things in life.
 
On March 8, 2012 Francis along with his Father Steven launched a book they both wrote that is a colabaration of Steve's photography & Francis' art works to raise money for DMD research.  The book signing was a great success & Francis could not have been prouder of the project. 
 
In the past year Francis has lost both his Grandfather's one year apart, Eugene Francis Weimer age 84, 1927-2011 & Douglas Vincent Desmond age 69, 1942-2012.  Francis was named after his Grandfather's, Francis Douglas.  These were two major loses for Francis, but he was wonderful at their funerals & made his Gramps & Papa very proud I'm sure.  Rest In Peace Gene/Daddy/Gramps & Doug/Dad/Papa we will always miss you, but you both will always be in our hearts.
 
August 2012, Francis did his Make-A-Wish, Wish.  He wanted to go on a Disney Cruise.  Francis along with his family Steven, Suzanne, Luke & Zoey went on a 5-night Disney Cruise to the Bahamas.  Never saw him so independent.  He had a limosine ride to the airport, spent time at a pirate party, spent time on the Castaway Cay beach, saw the Atlantis Hotel & Aquarium, played some Goofey Golf on the top deck, learned how to sketch Donald Duck & Mickey Mouse, enjoyed being waited on other than by Mom & Dad & on the last day of the cruise spent some private time with Captain Mickey Mouse.  Most importantly though, he had the time of his life!!!
 

Francis D.
Email: info@suneelslight.org  |  Phone: (716) 243-0882
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